Dr. Goodenowe sets ALS open house in Moose Jaw

Dr. Dayan Goodenowe will host an ALS Open House on Aug. 15 in Moose Jaw, Saskatchewan, for people living with ALS, their families, researchers and his health team. The event will spotlight a three-month ALS challenge, an upcoming research expansion and a self-directed research model that Goodenowe says is meant to help people track health changes over time.

Why it matters: - The open house puts people living with ALS and their families in direct conversation with Dr. Goodenowe’s team about a care-and-research model built around individual measurement, education and support. - The event also serves as a preview of a planned expansion of Goodenowe’s research infrastructure, which could shape how longitudinal ALS data is collected and studied. - Saskatchewan residents with ALS are being offered another path to learn about no-cost services in Moose Jaw.

What happened: - Dr. Dayan Goodenowe will host an ALS Open House on Saturday, Aug. 15, from 4 to 7 p.m. local time at the Dr. Goodenowe Restorative Health Center in Moose Jaw, Saskatchewan. - The event will include people living with ALS, their families, researchers and members of the center’s health and wellness team. - People unable to attend in person can join online through registration information on Dr. Goodenowe’s website. - The open house marks the completion of Goodenowe’s ALS summer challenge, which brought several people diagnosed with ALS and one caregiver to live at the Moose Jaw center for three months starting in June 2026. - Participants received free access to educational resources, research technologies, services and support during the challenge. - Participants will continue to be supported and followed after returning home. - Saturday’s program will let challenge participants describe, in their own words, their experiences, the challenges they faced before arriving in Moose Jaw, the health and functional measures they tracked and what they learned during the stay.

The details: - Goodenowe will explain the scientific framework behind the self-directed research model and why tracking changes in health and function over time matters. - Center staff will discuss the assessments, technologies, services and resources available through the program. - The event is structured as a roundtable discussion rather than a traditional presentation. - Family members and participants will join center staff for the discussion. - Prerecorded video will be used to document individual experiences from the three-month initiative. - A moderated question-and-answer session will be available for people participating online. - Goodenowe plans to continue offering services at no cost to Saskatchewan residents living with ALS. - Saturday’s open house will also explain participation requirements and what the first Moose Jaw group experienced.

Between the lines: - Goodenowe is framing ALS care around the person, not just the diagnosis, with an emphasis on nutrition, mobility, sleep, strength, metabolic health, emotional health and quality of life. - The model is built on self-directed research, meaning participants get access to scientific information and health assessments they may consider with their own health care providers. - Goodenowe says the program is not a substitute for medical care. - The emphasis on peer conversations suggests the initiative is also trying to address the social isolation that can come with ALS. - Goodenowe said the center’s work is meant to help people better understand their own health and make informed decisions for themselves.

What’s next: - Goodenowe and his research team plan to announce a significant expansion of their formal research infrastructure next week. - Additional details are expected on how longitudinal health and functional data can be collected and studied within a formal research framework. - Goodenowe said the new infrastructure is designed to help researchers measure people carefully, follow them over time and separate observation from proof. - Online attendees will be able to hear directly from participants during the open house.

The bottom line: - The Moose Jaw open house is both a community event and a test case for Goodenowe’s longer-term ALS research and support model.